I hope this doesn’t double post, because the phone app seems to have eaten my first reblog. It’s been giving me enough problems thst I copied the text, though, just in case.
I ran out of spoons to add much, when I was going to reblog this earlier. Hopefully I can come back to it once I have the spoons to track down more links.
But, not only does this proposed change reflect some nasty attitudes, it comes straight from one unfortunately influential
school of thought in the UK which has been very deliberately used to delegitimize disabled people for political purposes and weasel out of giving us the help we need.
The cluster of diagnoses included was kind of a giveaway there. They are indeed the ones pushing a combo of graded exercise which can be actively harmful, and CBT as the sole “treatments”.
There is no actual evidence that this is so, and plenty of research to the contrary. (Especially looking at some of the things they’re lumping in, like IBS which seems to be related to mast cells.) It disturbs me that WHO is even considering this move. It’s already had some nasty consequences
(plenty more; that was just the first thing I ran across trying to find something else). And I have personally experienced some of this particular accelerated version of “all in your head” with similar symptoms that seriously almost killed me because nobody even bothered to investigate what was causing them. (Celiac complications and probably EDS as mentioned in the first link.) This has the potential to seriously hurt a lot of people who are already struggling to get proper treatment.
(Which is not to say that someone dealing with a condition that really was coming from psychological causes somehow wouldn’t deserve good treatment for their pain and other symptoms. They definitely would, and they would still have very real disabilities going on. But there is no real evidence that this is even true for any significant number of people carrying any
of this cluster of diagnoses.)
I rambled on more than intended here, but this really is cause for concern.